We were up bright and early at 4am and out the door by 4:45am. I just kept him in his pjs and made sure to have his iPad, blanket and of course his new cape :)
All went well when we arrived and once they brought us back to get him dressed into his gown they brought us out and awesome push car that we could roam the halls with until his surgical team was ready to talk with us.
Zak is out of town so he was unable to be there with us today, however, my father flew in last night to work out of Boston for a week so he stayed with us the whole time which was very nice to have him there.
Everyone on the surgical floor loooooved Grayson's cape, some people knew it was a TinySuperheros cape and others did not, but I made sure to make them aware of their awesomeness!
Some people played along with Grayson and if they were walking ahead of him they would start running with their arms spread out so we could "chase" them and he loved that...others would walk up to us and ask, "Is that a Super Hero?!" and I would say, "Yes it is! It's Super Grayson!" and they would say, "I have never met a Super Hero before!". It meant a lot to me that everyone was so nice and played along with it so well :)
I am so happy that cape got here yesterday -perfect timing- and I don't know about Grayson, but him wearing the cape sure did make me feel better!
When it was time to talk with his surgical team, everyone was very great and allowed me to go into the OR with Grayson to help get him "asleep". I suited up and we brought his iPad in as well. They had me sit with him on my lap while one person held the iPad out in front of him and another held the mask to his mouth and another held his heady steady and it wasn't long until he was out.
I gave him a kiss on the forehead, told him I loved him very much and walked out of the room and proceeded to the waiting room. About 20 minutes later his surgeon came out to tell us that the surgery went great, however, his tear ducts were a little more open that she expected but she made them even wider in hopes that this will once and for all solve the problem of all the eye infections he has had since he was born...but if in a month or two it is back to its old ways, we will have to start looking at other reasons again and possibly have an even more invasive surgery :-\ So lets all pray this surgery works!
Following his surgeon, the recovery team came to get us to bring us back to him, they said he woke up very upset and gave him an additional sedative to help him calm back down while the anesthesia works itself out of his system.
Very quickly he started to wake up again, and was still very unhappy. He had blood in his tears, and his nose and his mouth (which is all normal but really hard to see as a parent). Him waking up very upset is actually very common for young children and then they said add in being non-verbal and autistic it can make it that much harder for them and even be a little violent. He was a pretty tough first 15-20minutes and once he started opening his eyes more and realizing that I was there and I was the one trying to hold him, he started to calm down and then we gave him his iPad and that helped out a lot. My Dad and I took turns holding him and got some fluids in him. Once they saw he was calm for awhile they started the discharge process and let us go on our way.
It was so hard to see him like that after recovery :( No one ever wants to see someone they love, especially their child, in that state of being so confused and upset and uncomfortable and no there is not a whole lot you can do to help except keep trying to comfort them the best way you know how and reassure them that everything is okay.
I have an amazing cousin whose daughter is only 2.5 years old and just had her 8th surgery and I don't know how she does it. They are both such a strong and brave Mommy/Daughter team and I look up to them so much.
On the ride home he fell asleep, but woke up again once I took him out of the car. We are just hanging out now and he has shown me he is hungry so I am slowly getting food and more fluids back in him and then probably take a nap in a bit because he has had a long tough morning so far.
Thank you everyone for all of your thoughts and prayers and lets keep praying this surgery works so he does not have to go through it again!
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