Just wanted to give a little update on Grayson since many people have been asking how he is doing :)
Grayson is doing wonderfully, he will be a year old in about a month, I have a hard time believing it has already been a year since he came into the world but it has been the most amazing year with that little boy, he is such a blessing and the best baby a new Mom could ask for.
Grayson finished wearing his 1st Cranial Band, but he is now in a 2nd one that he will most likely wear for about 4 more months but the band doesnt bother him at all, he is really good with it. He had a 3D CT Scan to make sure that the actual bones of he skull werent fusing together where he would need surgery, not the band, but thankfully that came back clear which was SUCH a relief. We just go to Cranial Band appointments every other week now just as with the 1st one.
He also had to be sedated the same day for an MRI to check nerves having to do with hearing but those came back with good results as well which was another relief. He is also really good with his hearing aids :) However, he does have his days that he pulls them out A LOT, but that is to be expected so he pulls them out, I put them back and we do that until he finally decides to just leave them alone :p Silly boy.
We had a hearing screen to compare results with and without hearing aids and it showed that the hearing aids are helping with his hearing and the more he wears them the better the results as he gets older and starts to learn how to actually recognize sounds as well.
He also had one of his tear ducts probed open while Zak was home on R&R because it was clogged and not opening up on its own and it is so much better now :) No more "gooky eye" :p
He has also started some Physical Therapy and Speech Therapy, he is indifferent about both of those. He loves doing PT at home with me when I work on the exercises with him...but when we go to the actual facility he gets very upset even though I am there, I think it is just some "stranger danger" with the Physical Therapist. He is also that way with his Speech Therapist but not as bad because she doesnt have to actually touch him so she just plays with him and does fun exercises with me and him...but he tolerates both type of exercises much better at home. So we will be going to PT twice a week and Speech Therapy once a week, and then have a Physical Therapist come to the house twice a month and a Speech Therapist will come to the house once a month that way not only is he getting all his exercises with the doctors in their facilities but also come to the house in his comfort zone as sort of a check in to see how we can incorporate all exercises more with things at home which is really nice.
He has such a great team behind him and I am so thankful for all of them.
Zak has been so wonderful and supportive as well even from afar. He is sad he cant be here to help with it all but when he is able to get on Skype he says to Grayson, "show Daddy your exercises Buddy" and so me and Grayson will show Zak via Skype his current PT exercises and Zak will say, "yay Buddy good job! Daddy's so proud of you" and it just melts my heart because I know this is tough for him to be away so to just see him get so excited for Grayson on how well he is doing with all his appointments and therapies just completely makes me so happy and so thankful that I was blessed to have him as my husband and father for Grayson because he is so wonderful with him all of the time, even from 8000miles away through a Skype screen ...he is just simply so wonderful.
Okay before I get too sappy...back to some things with Grayson.
He got 6 teeth in all at one time! 4 on the bottom and 2 on the top! Annnnd believe it or not he was not the typical crabby baby with teething. He did so great! And still is! He had some moments where he would get a little fussy but it was usually when he was tired as well but nothing big and nothing that lasted a long time he was just so great :) Such a big tough boy I say :)
Grayson has been through so much since he was born and making friends with doctors and specialist more than he would probably like, but I couldnt be more proud of that little boy because he has always, always done so well. I am never afraid of a new appointment or that it will be a bad day for him because he is always so calm and happy and just his awesome little self.
When I just think to myself everything that he has gone through since he was born and how many appointments and times he has had to be sedated for tests or surgery or anything and everything I am just so shocked on how well he has done with it all, he is absolutely just so amazing.
Other than all the medical stuff that is going on he is just being his happy little man self. We play all the time, we read a lot, sing a lot (good for his hearing and speech development as well as is fun), starting new foods any chance we get, figuring out his piano keyboard more and more every time he plays with it...instead of just banging on it now, he sometimes just uses one finger to play one key and then another, which is just awesome to see :) Still loves his appliances and electronics, still sleeping through the night, he has a great nap schedule as well which I partake in :) I love when I get the time to take naps with him. He sleeps all night in his crib but I love to put him in my bed and nap or nap with him on the floor and everyone kept saying to be careful because he might not sleep in his crib at night -but nope- not at all, he sleeps 10 to 12 hours straight through the night his in own bed :) On the warmer days we have had we have been going for walks on playing outside on a blanket and swinging in his baby swing he got for Christmas.
We have simply just been having fun :)
We just cant wait until Zak is home to have all kinds of fun family times together. About 5 months to go, so we are on the down slope until that day comes and it is a pretty darn good feeling :)
Time for sleep now though! Will keep all updated on Grayson, you will especially get a blog when his 1st birthday comes in a month!!
to the monster star and back