11 August 2011

Grayson's First Hair Cut

Grayson finally got his FIRST haircut!

Sadly I didn't get to be a part of it because I was working :-\ But since Zak is still on leave he went with Kimberly and it was a success :)

Such a super cute boy with his big boy hair cut!







11 June 2011

Fun at the Cape

After my visit to Plymouth MA about a month ago, I absolutely fell in love and had to go back so this time I decided to take Grayson and take him down to the Cape (Cape Cod). The weather really didn't agree with us except for probably one full day but we had some fun Mommy/Buddy time.

We went down to the beach just below the hotel and then went to this cute park on the water where we had fun swinging and playing on the playground.

Even though the other days were a little gloomy, it was still a great trip. I loved getting away with the little man and being in that part of the country...its just so different than TX or even NC...and I just absolutely love the ocean and the ocean and scenery up there is absolutely beautiful.

Here are a few photos from our little trip:








21 May 2011

Miracle Hearing

So a couple of weeks ago Grayson had an Audiology appointment, one that had a surprise ending...

I scheduled this appointment because Grayson has been messing with his hearing aids a lot lately and his Audiologist said that the settings may need to be changed on it.

So I brought him in  to check his hearing to make sure the settings of the hearing aids did not need to be adjusted...

...after the hearing test was over the Audiologist told me that the results showed NORMAL HEARING!

?!!?!?!

She and I were both in shock. Happy shock. Still shock nevertheless.

How could that be??

She was baffled and had no answers for me.

She was a little skeptical so had us come back 2 weeks from that day, so we can back in today..just before we are leaving to move back to North Carolina and....

GRAYSON HAS NORMAL HEARING!!!!!

I could not be a happier Mom right now :)

No more hearing aids for Grayson.

She said that he was probably messing with them because the noise it puts into the ear was probably bothering him :p

Oh I wish Zak was here to celebrate this wonderful news with! I already told him and he is so so happy!

This is such wonderful news.

Even though he does not have to wear the hearing aids he does still need Speech Therapy so please keep Grayson in your prayers of progression with his speech!


to the monster star and back!

15 May 2011

Chromosome 6

So, as some of you know Grayson has had some things going on with his development.

He has had hearing loss (which just recently "fixed" itself), had to wear the cranial band(s), and has been a bit delayed in his developmental milestones and has been getting Physical Therapy and Speech Therapy.

I have known that something was not quite right since he was about 5 months old and hit a plateau in his milestones and as time went on my mothers intuition kept telling me to keep an eye and do not let the doctors take it lightly.

Well, I'm glad I didn't take it lightly...

We finally found what seems to be the reason behind these things.

It turns out Grayson has a Chromosome Deletion of Chromosome 6q25.2-25.3

I do not know much about this diagnosis and apparently the doctors, including the geneticist don't either. It is a very rare deletion and there are only a few case files of other children on record with a similar deletion.

What we do know is that this chromosome deletion can cause hearing loss and global developmental delays and has been known to cause more serious medical and developmental conditions in other children.

That is all we know right now.

It is nice to have SOMETHING to go off out but it is also VERY frustrating to not be able to have further information to know how to better help Grayson in his development and if he will ever progress to catch up to other children his age.

Don't think I am backing down and settling for that little bit of information, I intend to dig my heels and and try to figure out everything that I possibly can to help our little boy.

I wish Zak was here :-\

Please keep Grayson in your thoughts and prayers.


until the end of all time

19 March 2011

Grayson's Monkey Party

Today was Grayson's 1st Birthday Party.

Monkey themed :p 

The decorations were adorable and so many friends and family joined in the celebration which meant a tremendous amount and am so thankful to have such wonderful people in our lives to watch Grayson grow up and be here for his birthday's.

Just a little sad though, which is expected since Zak had to miss his son's first birthday party but I am still happy and thankful that he was able to get on Skype and Grayson's actual birthday which is something I will never forget and cherish forever. 

On a happier note...

Grayson got a TON of school things for his birthday and I want to thank EVERYONE who came out for his birthday and for those who could not join thank you for thinking of him and sending your wishes :) 

HAPPY BIRTHDAY GRAYSON!!! MOMMY AND DADDY LOVE YOU SO MUCH!



to the monster star and back <3 b="b">

17 March 2011

HAPPY BIRTHDAY GRAYSON!!!

Today, March 17th 2011, Grayson turns 1 year old!!!

Our little St. Patricks Day boy :)

I cannot believe it has been a year already. When you hear people say, "they grow up so fast" you dont really know what that means until that 1st birthday.

It is a happy day and a sad day...sad only because Zak cannot be here with us :\ And I have a feeling not just this day, but this week is going to be an emotional one for me, so hang in there with me if I write some sappy blogs but I will try to not write on those days :p

Zak was, however, able to get on Skype for a little bit


This past year with Grayson has been such a blessing to say the least. He has been the BEST baby boy a Mom, especially a NEW Mom could ask for. He has made being a Mom so much fun. He is just awesome for a lack of a more sophisticated word.

Grayson has had to go through a lot in his first year of life but I couldnt be more proud of him. He has been such a brave and strong little man and pushes through all of his obstacles, he always does so well at every doctor visit and specialty appointments. He has to work much harder than other babies his age and I cherish every little thing he conquers so much more because of that. I know other parents get excited when their baby learns how to roll over, figures out how to put themselves in the sitting position from their belly, pick up food on their own and start feeding themselves, or when parents get excited when their baby starts understanding word associations, crawling, walking...etc...I know EVERYONE gets excited for all of those milestones...but I think I get even more excited because those things dont come as easy to Grayson he has to work very very hard because of his hearing loss and physical things that have delayed his development a little.

The slightest little thing that he does on his own makes me want to cry happy tears because I get so proud of him because its not all fun and games, he really has to work and sometimes its upsetting to him but he keeps doing the exercises and to see it pay off makes me so happy and it makes him so happy. "I DID IT!" is what shows on his face when he is able to do something on his own that we have been working on, and that face is just priceless.

He is just an incredible little boy and wit one year down, I cannot wait for all of the many years to come.





I love being a Mommy to this little boy :)

16 March 2011

Where's Spot

The book, "Where's Spot" has become one of Grayson's favorite books for us to read. He loves it and he has become so good at helping me turn the pages and lifting up, or down, or open with all the places that 'Spot' could be. It is so awesome to see him do these things because it reassures me that all the work he is putting in with Speech and Physical Therapy and everything else is working.

I am so proud of this little guy you guys have no idea. I know this might not be anything big but to me it melts my heart when I get to read with him and him help me with the story this way.

He is such an adorable little boy I couldnt ask for a better baby!


until the end of all time

03 March 2011

Grayson vs. iPad

So just another fun little blog. Grayson has taken over my iPad :p

I realized when it was just my Mom with the iPhone that Grayson looooooved it and then when I got my new iPhone, same reaction and I figured since my iPad is essentially a big iPhone that maybe  I could find some Baby Apps for him on there to play with.

Surely enough, Baby Apps for the iPad DO exist!

Grayson has been having a ball with the iPad now. I have Apps where he just has to pat the screen and it makes noises or different things happen, I have fun little videos...he is quite amused with it, and I am quite amused watching how cute he is playing with it :)



I love this little man.





to the monster star and back

27 February 2011

Belly Laughs

Zak I thought this might make you smile to hear your little buddy laugh from his belly :)

We love you so incredibly much and miss you millions!

until the end of all time

15 February 2011

Grayson Update

Just wanted to give a little update on Grayson since many people have been asking how he is doing :)

Grayson is doing wonderfully, he will be a year old in about a month, I have a hard time believing it has already been a year since he came into the world but it has been the most amazing year with that little boy, he is such a blessing and the best baby a new Mom could ask for.

Grayson finished wearing his 1st Cranial Band, but he is now in a 2nd one that he will most likely wear for about 4 more months but the band doesnt bother him at all, he is really good with it. He had a 3D CT Scan to make sure that the actual bones of he skull werent fusing together where he would need surgery, not the band, but thankfully that came back clear which was SUCH a relief. We just go to Cranial Band appointments every other week now just as with the 1st one.

He also had to be sedated the same day for an MRI to check nerves having to do with hearing but those came back with good results as well which was another relief. He is also really good with his hearing aids :) However, he does have his days that he pulls them out A LOT, but that is to be expected so he pulls them out, I put them back and we do that until he finally decides to just leave them alone :p Silly boy.

We had a hearing screen to compare results with and without hearing aids and it showed that the hearing aids are helping with his hearing and the more he wears them the better the results as he gets older and starts to learn how to actually recognize sounds as well.

He also had one of his tear ducts probed open while Zak was home on R&R because it was clogged and not opening up on its own and it is so much better now :) No more "gooky eye" :p

He has also started some Physical Therapy and Speech Therapy, he is indifferent about both of those. He loves doing PT at home with me when I work on the exercises with him...but when we go to the actual facility he gets very upset even though I am there, I think it is just some "stranger danger" with the Physical Therapist. He is also that way with his Speech Therapist but not as bad because she doesnt have to actually touch him so she just plays with him and does fun exercises with me and him...but he tolerates both type of exercises much better at home. So we will be going to PT twice a week and Speech Therapy once a week, and then have a Physical Therapist come to the house twice a month and a Speech Therapist will come to the house once a month that way not only is he getting all his exercises with the doctors in their facilities but also come to the house in his comfort zone as sort of a check in to see how we can incorporate all exercises more with things at home which is really nice.

He has such a great team behind him and I am so thankful for all of them.

Zak has been so wonderful and supportive as well even from afar. He is sad he cant be here to help with it all but when he is able to get on Skype he says to Grayson, "show Daddy your  exercises Buddy" and so me and Grayson will show Zak via Skype his current PT exercises and Zak will say, "yay Buddy good job! Daddy's so proud of you" and it just melts my heart because I know this is tough for him to be away so to just see him get so excited for Grayson on how well he is doing with all his appointments and therapies just completely makes me so happy and so thankful that I was blessed to have him as my husband and father for Grayson because he is so wonderful with him all of the time, even from 8000miles away through a Skype screen ...he is just simply so wonderful.

Okay before I get too sappy...back to some things with Grayson.

He got 6 teeth in all at one time!  4 on the bottom and 2 on the top! Annnnd believe it or not he was not the typical crabby baby with teething. He did so great! And still is! He had some moments where he would get a little fussy but it was usually when he was tired as well but nothing big and nothing that lasted a long time he was just so great :) Such a big tough boy I say :)

Grayson has been through so much since he was born and making friends with doctors and specialist more than he would probably like, but I couldnt be more proud of that little boy because he has always, always done so well. I am never afraid of a new appointment or that it will be a bad day for him because he is always so calm and happy and just his awesome little self.

When I just think to myself everything that he has gone through since he was born and how many appointments and times he has had to be sedated for tests or surgery or anything and everything I am just so shocked on how well he has done with it all, he is absolutely just so amazing.

Other than all the medical stuff that is going on he is just being his happy little man self. We play all the time, we read a lot, sing a lot (good for his hearing and speech development as well as is fun), starting new foods any chance we get, figuring out his piano keyboard more and more every time he plays with it...instead of just banging on it now, he sometimes just uses one finger to play one key and then another, which is just awesome to see :) Still loves his appliances and electronics, still sleeping through the night, he has a great nap schedule as well which I partake in :) I love when I get the time to take naps with him. He sleeps all night in his crib but I love to put him in my bed and nap or nap with him on the floor and everyone kept saying to be careful because he might not sleep in his crib at night -but nope- not at all, he sleeps 10 to 12 hours straight through the night his in own bed :) On the warmer days we have had we have been going for walks on playing outside on a blanket and swinging in his baby swing he got for Christmas.

We have simply just been having fun :)

We just cant wait until Zak is home to have all kinds of fun family times together. About 5 months to go, so we are on the down slope until that day comes and it is a pretty darn good feeling :)

Time for sleep now though! Will keep all updated on Grayson, you will especially get a blog when his 1st birthday comes in a month!!


to the monster star and back

14 February 2011

Everyday Valentine

"Oh, if it be to choose and call thee mine, love, thou art every day my Valentine!" 
Today is Valentines Day 2011 and today I spend it without my husband for the second year in a row and you would think that I would be so emotional today because of that but in all honesty I am not. And not for any negative reason, no, but because even though Valentines Day is a fun and sweet holiday, it is not one that me and Zak NEED to spend together to show how much we love and care for one another. We express our love for each other every single day, no exagaration there at all. The way we act with one another whether we are in person or half a world apart you would think we were still in our "New Love" phase of our relationship. I absolutely love that. When we got married I even said to him, "I never want to lose that 'New Love' type of feeling...I want to grow together and get so comfortable but I always want to have the butterflies" and that is exactly what we have done, we have kept the New Love alive and it makes everyday feel like every other persons Valentines Day. Yes, as any couple we have our ups and downs but no matter if it is an up day or a down day we never, ever stop showing each other how much we care and love and how thankful we are and happy we are. My husband is truly my Everyday Valentine.
But since he cannot be here, today Grayson is stepping in to be my "date" where we will play with lots of toys, sing lots of songs, read lots of books, play outside and snuggle up before bedtime.  :)
I miss you so very much baby, thank you for making me feel special every single day and not just because it is a holiday :) You are amazing.
 until the end of all time 

29 January 2011

Halfway Mark

Okay, so...if we are going by the actual day of the month from when Zak left for deployment...TODAY WOULD BE THE HALFWAY MARK!

Finally.

We are finally on the down slope of this deployment and the end cant come quick enough.

I dont have too too much to say about the half way mark because yes, it is exciting that we are halfway through but still it sucks to have 6 more months to go without seeing my husband and I know it is getting hard on him knowing Graysons birthday is coming up and he will have to miss it and by the time he gets home for good Grayson will be much different from even when he saw him at 9 months old. SO yes it is great that we are halfway over with this thing but there is still so much time left that it puts a damper on on that excitement.

I will probably worry more in the next 6 months than I did in the 1st because I just want it go by by fast and him get home safe to us that I am going to be worrying that something could still go wrong ...something could always go wrong and with the weather getting warmer I fear of more combat as read in the news and whatnot.

So I am kind of up and down with the next 6 months, I want them to fly by and things go smoothly. I am going to try to keep busy with many appointments that Grayson has, a trip to NC to house hunt and hopefully find the house we want, close of the house, Graysons Birthday and finally moving back and getting everything unpacked and settled in before the big day comes where they are FINALLY HOME FOR GOOD and I can really truly be happy without the worry and without the dampers on my parade.

So here's to making it through the 1st 6 months ...and here is to the next 6 months... may time fly and may God keep my husband and the rest of the guys safe from harm while trying to make it home :)


I miss you so much baby, please be safe these next months to come and get home to me and Grayson :)

until the end of all time

24 January 2011

The Teeth Are Coming!

So overnight...or so it seems...Grayson has a mouth full of teeth coming in!

He already has one little tooth to the side on the bottom in but out of no where he has 3 or 4 others on the bottom trying to work there way through and at least 2, feels like maybe more on the top! I keep making jokes that one of these days I am going to go in his room in the morning when he wakes up and he is going to look at me and smile like he always does but he is going to have a whole front mouth of teeth haha.

Surprisingly enough, I have been lucky with the teething. He has been great. He just chews on his teethers, and well, just about anything, and he is never really fussy with it. I have probably just jynxed myself by saying that, but I was so worried with all the horror stories you hear about teething and babies being up all night and such a handful all day with it that I kept dreading it to happen, but as of right now, I cannot say, "they told me so" because I have not had that experience with him.

He's a tough big boy :) Just like his Daddy. He can take a lot of pain before it really hurts. I am not surprised though. This little boy has been through so much in his 10 months of being alive and he has always been so tough and such a "big boy" as I always say with all of it. I am always so proud of him :)

I cant wait for all these teeth to come in so I can take pictures! Dont worry I will post as soon as they do!

to the monster star and back

21 January 2011

Audiology Appointment :)

Just a little update on Graysons hearing:

Grayson had his first Audiology appointment today since he got his hearing aids.

They did a hearing screen with the hearing aids in and compared that screen to the results from the previous screen without hearing aids. And the results: MUCH better than without hearing aids :) Which means they are working very well and the Audiologist said that as he continues to wear them the results should get better each time especially as he starts to recognize certain noises.

He has been such a good baby when it comes to the hearing aids :) He doesnt try to pull them out, he lets me put them right in where as the 1st few days of having them he would fight me the whole way through and now he just lets me do it without any problems. 

The hearing aids are also not very noticeable at all. If you are looking at him by standing or sitting in front of him, you cannot see that he is wearing them at all, and unless you are really looking at him you cant really tell he is wearing them from any other angle either which is a plus as well.


We will be going back in March for another screen and on that day will do both with and without the hearing aids to do another comparison. I will keep you updated!

to the monster star and back

05 January 2011

Sippie Cups & Pancakes (Day 159)

This morning Grayson had his first pancake and to accompany the pancakes, why of course...some scrambled eggs :)



He really liked it. He is getting more and more into eating "big boy foods" than his baby food, but from time to time prefers the baby food over regular but I was excited to give him pancakes and eggs --now me and him can have real breakfast together in the mornings.

Along with him starting to eat real table food he has almost gotten very good at mastering the sippie cup. I am beginning to take him off the bottle so I try to substitute 2 of the 4 bottles he has a day with sippie cups to start getting him use to it as well as giving him a sippie of water with some meals. In the morning and night bottles he absolutely wants it to be a bottle, but during the afternoon he doesnt mind it being the sippie cup :)




I cant believe that he will be 10 months old in just under 2 weeks, and then shortly after that will be his 1 year old birthday! Time is flying by. People always say, "they grow up so quickly" but you never realize how true that is until you have your own baby.


I cant wait for more changes to come, I love seeing him start new things and get excited with himself when he learns something new or masters something he has been working on, I just get so sad when Zak cant be here to see a lot of this in person. He gets to see pictures and videos and gets to see him on Skype sometimes, but I know its not the same and I know it makes him sad...but I keep trying to tell myself that when Zak gets home Grayson will be walking and up playing around so him and Zak will be able to do so much fun stuff together and really get to bond and have that "father/son" experience.

Thanks for reading!


to the monster star and back

01 January 2011

"Remember Me"

Ghandi once said, 
"Whatever you do in life will be insignificant, but it's important that you do it, because no one else will".
 
The quote above is well, obviously Ghandi, but is also from a movie titled, Remember Me. Has anyone else seen it? Well I am not going to tell you anything about it because I do not want to spoil it, but I do have to say it is such a powerful movie. It is quite sad at times but it is real and I love movies that make you feel like you can relate to it. This movie grabs you from the beginning, and intrigues you along the way, getting you attached to the characters with the ways you can relate to them, and then the unexpected happens and makes an ending to a movie that leaves your jaw on the floor and your eyes filled with tears because even though it is simply just a movie, the ending.....well.....if I try to describe the ending you just might guess what it is I am speaking of. Let's just say, in the final scenes, when the camera begins to zoom out (you will know what I am speaking of) your heart will sink ---or at least mine did.
 
I dont know if it is just me and things that have occured in my life directly, or indirectly-directly meaning that happened to friends or family, but I really got attached to this movie and fell in love with all of the characters and the whole story line in general.
 
I am, as we speak, watching it again because it touched me so much. This movie was promoted pretty well, but I do not think the preview promotions did it enough justice because I do not remember thinking the movie would be anything like it was when I originally saw the preview months back. From the promotion picture it may look like it is going to be a chick flick -which is what I thought at first- but I assure you it is not. So for the guys reading this, I even promise you, I am not tricking you into watching a chick flick.

I love movies, and I usually have a lot of good things to say about movies I watch, but it has been awhile since I have really wanted to get everyone I know in a room and force them to watch this movie no matter what the turn out of their thoughts on it might be.


But I have to say I am so glad that I decided to rent it. And I suggest you do as well. I did warn you, that it is a bit sad but you will not regret it.
 
The trailer or description below do not do this movie justice -but I will say, I am so glad they left everything that they did out of the trailer and the description and make you go into the movie thinking it is going to be something that it isnt, because it just makes it that much better.
 
"In the romantic drama Remember Me, Robert Pattinson plays Tyler, a rebellious young man in New York City who has a strained relationship with his father (Pierce Brosnan) ever since tragedy separated their family. Tyler didn't think anyone could possibly understand what he was going through until the day he met Ally (Emilie de Ravin) through an unusual twist of fate. Love was the last thing on his mind, but as her spirit unexpectedly heals and inspires him, he begins to fall for her. Through their love, he begins to find happiness and meaning in his life. Soon, hidden secrets are revealed, tragedy lingers in the air, as the circumstances that brought them together threaten to tear them apart. Set in the summer of 2001, Remember Me is a story about the power of love, the strength of family, and the importance of living passionately and treasuring every day of one's life."